The Community Living Policy Center (CLPC) is a Rehabilitation Research and Training Center funded by the National Institute on Disability and Rehabilitation Research, U.S. Department of Education, and the Administration for Community Living, U.S. Department of Health and Human Services. Housed at the Institute for Health & Aging of the University of California San Francisco, the Center aims to identify methods of improving the long-term services and support (LTSS) system in the states, improve data collection on community living policy, and develop a strategic plan for community living research. CLPC research partners are the Department of Disability and Human Development at the University of Illinois at Chicago and the Paraprofessional Healthcare Institute (PHI). Knowledge translation partners are the Disability Rights Education and Defense Fund, National Council on Aging, policy expert Henry Claypool, Topeka Independent Living Resource Center, and the Sibling Leadership Network.
CLPC will conduct six broad research projects between October 2013 and September 2018:
(1) Development of a strategic plan for community living research, which involves convening an expert panel to identify and prioritize research questions, and then identifying research strategies that could address those questions.
(2) Identification of promising practices in state LTSS systems, using workgroups to nominate candidate practices, followed by collection and synthesis of research findings on the practices, and then selection of promising practices by an expert panel.
(3) Conducting an inventory of state LTSS policies, practices, programs, and future plans, which includes surveys of state officials on policies related to access to home- and community-based services (HCBS), collection of data on participants and expenditures in different HCBS programs in the states, gathering information on states’ use of worker registries and consumer-worker matching services, surveying states as to LTSS worker training requirements and curricula, analyzing data on worker wages and benefits, and collecting and identifying common themes in state Olmstead plans and Olmstead-related litigation.
(4) Conducting evaluations and cases studies, involving (a) the transition to managed LTSS in California and (b) comparisons across local managed LTSS implementations in California; (c) comparisons across managed LTSS and care coordination models implemented in Illinois; and (d) comparisons across model states in worker training standards.
(5) Basic research on selected topics in community living, involving analysis of national survey datasets to obtain information on (a) trends in family caregiving and the impact of policy on caregiving, (b) supply of and demand for accessible, affordable housing, and (c) state variation in community participation among people with disabilities.
(6) Development of methods for improved monitoring of progress in state LTSS systems, which involves identifying needed data elements and strategizing ways of collecting that data and making it available for analysis.
The knowledge translation partners will perform essential roles in both research and dissemination. They will provide stakeholder input into all phases of the research activities, and will help identify topics of interest for and approaches to dissemination, as well as creating and helping create dissemination products. Training activities center on development of an online curriculum for personal assistants and caregivers. A technical assistance network will serve as a conduit between RRTC research and systems change at the state level, and technical assistance will also be available from the RRTC to address emerging policy questions.