Reports & Publications

July 2019
H. Stephen Kaye
A line graph of the institutional population per 100,000 state population between 2007 and 2017, showing larger declines in High and Medium MFP states than in non-MFP states.

Since 2007, states with Money Follows the Person (MFP) programs transitioned more than 90,000 people receiving long-term services and supports in institutions back to their homes and communities.

June 2019
Autistic Self Advocacy Network
The logo of ASAN

During the Community Living Summit held on May 3-4, 2018, the participants came up with a lot of questions about studying autism and living in the community. After the Summit, ASAN thought about what they said and then came up with some more questions.

Together, we came up with seven big questions:

1. How can we help autistic people live in the community?

2. What is the autistic community like?

3. How should we study autism?

4. How can we help autistic people stay on track?

5. Where should autistic people live?

June 2019
Austistic Self-Advocacy Network (ASAN)
The logo of ASAN

This report describes and examines themes discussed during a self-advocate summit on community living for people with intellectual and developmental disabilities, or I/DD. The Community Living Summit, a two-day moderated discussion, was hosted by the Autistic Self Advocacy Network (ASAN) and funded by the University of California, San Francisco's Community Living Policy Center.

The purpose of the summit was:

May 2019
H. Stephen Kaye
The logo of the American Journal of Public Health

Objectives: To explore the effect of the Affordable Care Act (ACA) on disparities in access to health care based on disability status, as well as age, income, race, and ethnicity.

February 2019
Ari Ne'eman
A map of the U.S. showing states with managed LTSS programs in blue and the other states in gray.

As a growing number of states adopt Managed Long-Term Services and Supports frameworks, it becomes imperative that ongoing efforts to promote HCBS over institutional services continue and are integrated into the incentives and requirements of managed care contracts. Managed care can help states accelerate the shift towards the community--or slow and reverse it, depending on the incentives put into requests for proposals and contract language.